Hari and How you can help him

Its been a week from last post.So at first - Honest THANKS - on  Hari's behalf  to all of you wishing/praying/hoping well for him.
In the last week we got update from DAN Doctor with part of his blood work
1. Auto immune disease (Thyroid) - Negative.
2. Vitamin D Deficiency- Yes
3.Allergy blood cells - Yes
So started with the supplements and need to do more prominent testing for Allergy later.
Now, everyone wants to know how to help Hari? 
 Play with Hari like any other kid- whenever you can - In parties,Our Home,Your Home
           We want Hari to understand playing with you is more fun than any toys.So if you can spend 5-10 mins with him dedicated and make yourself familiar with him- thats a big help!.
Tips given to us by Speech Therapist/Teachers/Doctors  while playing with Hari.
1.Sit to his eye level.
2.Start with greeting him - Hi and if he doesnt repond  -please repeat and prompt him -use your hand to lift Hari's hand and gently wave.
3.Appreciate him - claps.
4.Give Hi-five.
5.Play Peek a boo.
6.Hari loves tickles.Play tickles,Catch ball,Throw ball ,etc.
7.He like to be lifted and raised high.
8.Jumping with him.
9.Introduce yourself  say your name -take Hari's hand  and touch your chest and say your name.Create your own playtime in your style.
10.Say bye.

How to help us?
1.You all are already helping us by being there.Need  lots of positive energy through you all and please no pity.I am happy to answer your concerns but I dont want that alone to be part of our social time .So as ususal include us in your Happy and Hard moments.If we need help I will let you all know.
2.We are planning to start ABA Therapy - Verbal Behavior  from coming week and need therapist like Tutor One-One.If any of your friends know any therapist willing to work,College students/Part time seekers want to work ask them to contact me.
3.If you know any other parents in same situation and if they are doing any thing that you think will be helpful for Hari -let us know.
4.Good/bad you want to share reg Hari.Being with child all the time I dont see few thing I do wrong with him or If you notice anything in Hari that you want to share,Dont hesitate- you can tell us.Will be helpful to keep track of him.

Love and prayers to all
Anu

Hari - 3years old

It all started last year during Christmas 2012 I was concerned something is not right about hari, which I find hard to explain to anyone including Prashanth.
First step - We asked pediatrician during Feb 2013 and raised our concern about Hari  not talking/playing with other children and cranky every morning.They recommended a service called "Child Find".
Second Step- Child Find evaluated hari  all through summer and said Hari is  mostly having Autism Spectrum Disorder.For us we  dont know what I am hearing is true or not  and at the same time I dont know the impact of it in his life ,our life and what it means - My mind started thinking -Is it a disease/disability.
They addded "He is eligible for Special Education and they can help him . Hari is going to Special preschool to improve his Speech and Social Skill.


To all our Friends it means -
Hari is not able to communicate/Talk to others,Play with others.

You can learn more about it

http://www.autismspeaks.org

Third Step:How to help Hari?
Now we are in the phase of learning how to help Hari. One of our friends introduced us to a parent who has 12 years of experience with Autism world through their kid.

It is group effort of  below specialists
1. Developemnetal Pediatrician/Neurologist - To track his development going forward,
2. Bio-medical Doctor - Check his other triggers/deficiancies he might have and to treat it.
3. Gluten Free-Casein Free-Soy Free diet - Special diet to avoid further complications.
4. Therapy - Speech,Occupational,Physical Therapies  - To speak and strengthen him.
5. ABA therapy - Like teaching him to communicate and learn.

We are in the process of getting appointment for initial Consultation -all of the above specialists.

Fourth Step:How long will it take to cure Hari / When will he talk?
I was asked this question from many of dear ones with right intention and the answer is I don't know
Honestly no one knows the answer. I have asked every single mother/doctor/therapist this million dollar question.What we know is Our child  is not able to talk and we are helping him in the best possible way we think is right and safe for our Hari. We will try to help him as long as it takes and as long as we can.