Wednesday, September 16, 2015

Happy Anniversary Prashanth

I always write about Hari,Harshitha and our treatment on Hari.On this occasion of our anniversary I take this opportunity to share about Prashanth .

My love grow more everyday for him since  the day I met him I think.If someone asked why you want to marry him 11 years back - I would say because my mom said so.But never a day I think I am in this marriage because my parents said so ,it's because I love the life that we are trying to build together. Like any other person or marriage in the world we have good  and hard time.

You want to share good times with your friend ,but you need a friend in your hard time to help you out.Your respect and love grows deep seeing him around you ,showing you he is like an anchor on your side ,not leaving whatever risks or danger you are in .His thoughts and actions are to  sail you back safe and Prashanth has shown me time after time that he is that friend to me .
Most of the rough time -let it be  Harshitha's initial 2-3 years years of  wheezing, my mom's illness and eventually her passing away, my leg injury , Hari's diagnosis of autism  and every day since then our life is always about fixing a problem, finding a doctor, look  for therapies, other alternative interventions to help our family.He not just been there, but to keep our household to have a normal life.

One thing is sure -Prashanth is always there to stand next to me,supporting every single decision I make irrespective of outcome it turn out for Hari. It's been hundreds of decisions and thousands of dollars still he never said no to any of  my new treatment plans for Hari .

Patience - He is man of patience or else so for atleast once a day  is 11 years * 365 times I need to apply for divorce .I know I am the trigger for your anger . (every time you loose your mind ,please see  I am your help to get back to normal Let it be being most careless things I do by loosing a home key,wallet,cell phone ,or accidents or any other one etc  ( I can fill in for rest of the day if I have to put every single one of them in the last 11 years)  .I see behind every anger moments of you ,there is never a husband or a man ,I always seen a genuine person with concern about safety of our home and  family. Including the one today morning - for every one of them sorry and I am working to be more  aware  and safe. 

From giving reminders to take my medicine to handling biggest of finances , I know you are there.I respect every comfort that you give to Hari as his Dad .My prayers for our happiness to grow together in every day more .

Thanks for being such a lovely person and my prayers to stay as loving,caring,honest person .

Friday, April 17, 2015

It's autism awareness month - pray for all those lovely children

Hi all
Every time I speak about Hari and his good.Let me share today about our hard times too .
 Hari is enjoying his horse therapy and he looks so cute too.He is getting so naughty , want to throw any toy in our back yard.he is successfully getting potty trained. He is learning to sort things ,play more ,enjoy other children more .

It's been since august 2013 anu's top ten reason for  saying "I had a long day "to Prashanth .
1.I am trying give milk  for his  calcium n other good in them ( almond milk ) .till date I have not been able to give.I would have wasted world's most amount of milk  I think.
2. I want to teach Hari to spit water after brushing his teeth .
3. Only fruits he used to take are banana, strawberry and clementine. Now he became so picky I need to make him play in swimming pool to Make him eat a banana.
4. As all know Hari is on milk free,wheat free diet ,his choice of food is limited to rice, dal,sambar,rasam ,pulao, dosa,idly ,quinoa.if he did not eat rice and dhal or idly or dosa ,honestly my day is gone . I try to cook as many things he would have ate in last one month whatever and try to recreate the same in my kitchen.I have no clue on many days on what to prepare next  to try feeding him before my next speech/ OT appointment.
5. Every week I go two to three times to speech/ OT .I need to leave harshitha in couple of my friends house to avoid her .I need to check if they are available back and forth phone calls to Prashanth,my friends ,packing her snack very time ,pick up n drop.
6. I was told to work with sign language, picture , now ipad ,visual schedule , to communicate  with my little one for basic needs  and wants. Sometimes I think when will I make a normal conversation with him .
7. Hari is with behavior ,speech and occupational therapist .Each give you ever growing list of  homework,recommendations,views and to do/ not to do and to make all three parties work together is a challenge .
8. Harshitha and Prashanth ...oh my god that's a combination like mother in law - daughter in law combination .  My little 9 year old teenager and her school work / art work / swimming / gymnastics .
9. My sweet Prashanth and his concerns - so true ,informing me to eat my breakfast,don't take coffee,go to gym, eat healthy .
10. Best of all -meeee. Everyday one of the above is prone to happen , I will try to move myself from negative ti positive though like a game.

I heard it other day in my favorite show - Good things/time/job / money/ status/ achievements when we will have is not important . We need to know what we have  is already a very good life , please take a moment to see and respect it and enjoy.














Monday, March 9, 2015

Hari - February 2015

Our Hari is doing wonderful these days. He is more naughty, trying to communicate and play with us.
He is showing lot of  interest in things around him - people, toys and kids.he try to observe his surroundings to see what they are doing,give a smile and initiate his communication by playing with their hair, rocking on their back.


Speech and communication:
1.He goes twice a week for speech therapy.we teach to echo the sounds.using say this"a".
His sound bank includes - a,e,o,I,u,b,t,m,p,s,f,sh,w,k,c.
2.He started communicating his needs through sentence like I want swing since January
He say I wa swing .
3.He had  acquired lot of words and then lost many of them. So our goal is to make him consistent.
4.He is awesome in receptive - when you try to play or help him with his snack.
5.He follow two - three step direction if you go slow.
Example - Come here. Let's go out.open the door. Get the bowl.sit on the stairs. Where is the cookie?

Occupational therapy : he is going twice a week
He is showing immense improvements in here.I know it sounds silly for mother of normal child but it's kind of big for us looking at Hari doing these as it is milestone achievement from him.
1. Catch the ball - 1-2 foot distance.
2. Throw the ball.
3. Open different lock in door
4.using pencil grip to take of clothe clip.
5. Playing roll/ push the big exercise ball with other person.
6.hold and draw a line - working on it
7. Hit the ball like cricketer hitting ball  tied to the rope.

ABA therapy.
He has around 35 hours weekly working on most of the above.
He love to play social games like ring around the roses, hokey pokey song,head shoulders knees and toes,London bridge,pat a cake.he imitates and dance for these songs.
He like to imitate our actions.
He is learning People to identify his Amma,appa,akka
name of the rooms around home like kitchen,bedroom.
He is learning to go bathroom - getting potty trained with lot of success .

Floortime therapy:
He loves to play hide and seek under the blanket. We are playing swing with the blanket .Harshitha shows great support to maintain his acquired language .she acts likes trained therapist. She plays catch with him, play rhymes with him.she shares her room,toys and behave like a big sister most of the times.love you girl for being such a nice big sister and lovely,kind human. She gets angry if someone teases Hari. That's a pleasure to watch her defend her younger brother.

My angel harshitha
One kid said Hari is a baby and he is still in diaper and can't speak.
Harshitha's response- Hey act like a big kid .you sound like a bully .That not kind to talk about my brother inability like that. He is learning to speak and he can use bathroom at my home.
She was red and gasping saying this. I am so thrilled to see her being a responsible sister. I got my tears looking at the situation where I was thinking what to say to the other child and she stepped up.

Hippo therapy .
It's otherwise called equine therapy . Horse based physical therapy.it like hobby,workout, physical therapy and many children on special needs love them. I kind of like Hari would look handsome like a prince on it and want to give Hari a feel of it .Hari being a master and horse listens to him.
He is going to start it on march 12 2015. So next time I try to get pictures of him on it.