Happy new year to all .
Friends are so supportive and few suggested to post Hari's picture and add few thing to blog.Will do once I learn how to till then please wait.
Last two weeks that is our motto - Be patient , Learn about Hari and Help Hari.
Potty training
We decided to start Potty train Hari utilizing our winter break at school. It is a challenge for any kid and with Hari since he cannot express it we are super scared about it and also about carpet cleaning. With mindset of lets do it we put him in a normal underpants. At the end of two weeks not yet one potty in potty chair - hard luck. But he did his one bathroom when we took him consistently. So good job for Prashanth and Hari both handling it well so far. Now starting this week we are teaching sign for Potty.
Any results back yet ?
I think I have told about one of lab work went outside USA .It came back with lots of details about Mercury toxicity, immune condition and Gutt Infections that he have . We are waiting for one more lab result, hopefully by this month end that will also be back.
I understand your want to know -What in the world it means? What treatment is available? How long do we have to give? Is he going to get benefitted out of it? How does this related to Autism/Speaking/Recovery?
We have scheduled for Skype appointment with DAN Doctor on Jan 28.After that we will know and will share as soon as I know the answer. Till then I am trying to be patient so please wait with us.
What happened to all specialist ?
We have scheduled Pediatric neurologist appointment -March 26 2014,Developmental pediatrician - still waiting.
Therapies :
Evaluation is a big thing in therapy world. They want to know where is the child now? What is it bothering him ?How much gap he has with any other normal child of his age? How to fix it and How many hours needed?
There are so many therapy which are proven effective. What works best for our child we will know by trial and error method.ABA/FLOOR TIME are two popular therapy to teach the child how to live like us.
We want to start ABA as we got consultant for it and Floor time as of now is given at school and we are learning about it.
With lots of problems with Insurance no ready to kick in fast. We have decided to go and do anyways on our own.
Applied Behavior Analysis Therapy: It is like speech therapy.
We started with ABA Therapy - Verbal Behavior (Applied Behavior Analysis) from Dec 3 week.
1.Assessment - It is complete and they wanted him to start therapy with 20 hours/week minimum and goal of 40 hours/week.
2.Manding
We teach him both sign and word of things he like. We show chips and say chips and also using sign language .We pick his hands and show him this is the way he has to ask if he needs it.We have started with Chips, Water, Rice, Bounce. So please as per therapist we should not use it outside the therapy time. Please dont try to ask him or give him those when you see him next.
Sensory Therapy:
I know it is new I am saying but I am learning new every day and each one of them say that is the most important for his needs and everyone says they are like foundation. Our body and mind is connected and our five senses play huge role in our mood /temperament and the way we receive and accept our envioronment.Most autism children have auditoy /visual issues.If you have noticed Hari he like to flap his hands,close his ears ,chew things, these are symptoms he could have sensory disorder.Sensory Motor Integration doctor said he is like getting to know how his body react to envioronment and help him.So scheduled his evaluation and it will be done in Jan end.
Decision:
So January end is lot of bomb shells on us. Just kidding. So like a poker player should learn to wait and watch and win when opportunity is right.
With Hari God willing and with love and prayers of you all help him and start his recovery journey in right path.
Mommy's Job:
Searching /Finding therapist who is willing to work couple of hours every day - FOR ABA.
Play role of therapist till then. Everyday between 2-5 I will be in therapy with Hari. So can reach me any other time with any questions/concerns. Taking him to sensory evaluation.
Friends please do drop by to our home any day evening after 6 p.m to play with Hari. Weekends anytime after 1 p.m. We love to have your company around us too.
Friends are so supportive and few suggested to post Hari's picture and add few thing to blog.Will do once I learn how to till then please wait.
Last two weeks that is our motto - Be patient , Learn about Hari and Help Hari.
Potty training
We decided to start Potty train Hari utilizing our winter break at school. It is a challenge for any kid and with Hari since he cannot express it we are super scared about it and also about carpet cleaning. With mindset of lets do it we put him in a normal underpants. At the end of two weeks not yet one potty in potty chair - hard luck. But he did his one bathroom when we took him consistently. So good job for Prashanth and Hari both handling it well so far. Now starting this week we are teaching sign for Potty.
Any results back yet ?
I think I have told about one of lab work went outside USA .It came back with lots of details about Mercury toxicity, immune condition and Gutt Infections that he have . We are waiting for one more lab result, hopefully by this month end that will also be back.
I understand your want to know -What in the world it means? What treatment is available? How long do we have to give? Is he going to get benefitted out of it? How does this related to Autism/Speaking/Recovery?
We have scheduled for Skype appointment with DAN Doctor on Jan 28.After that we will know and will share as soon as I know the answer. Till then I am trying to be patient so please wait with us.
What happened to all specialist ?
We have scheduled Pediatric neurologist appointment -March 26 2014,Developmental pediatrician - still waiting.
Therapies :
Evaluation is a big thing in therapy world. They want to know where is the child now? What is it bothering him ?How much gap he has with any other normal child of his age? How to fix it and How many hours needed?
There are so many therapy which are proven effective. What works best for our child we will know by trial and error method.ABA/FLOOR TIME are two popular therapy to teach the child how to live like us.
We want to start ABA as we got consultant for it and Floor time as of now is given at school and we are learning about it.
With lots of problems with Insurance no ready to kick in fast. We have decided to go and do anyways on our own.
Applied Behavior Analysis Therapy: It is like speech therapy.
We started with ABA Therapy - Verbal Behavior (Applied Behavior Analysis) from Dec 3 week.
1.Assessment - It is complete and they wanted him to start therapy with 20 hours/week minimum and goal of 40 hours/week.
2.Manding
We teach him both sign and word of things he like. We show chips and say chips and also using sign language .We pick his hands and show him this is the way he has to ask if he needs it.We have started with Chips, Water, Rice, Bounce. So please as per therapist we should not use it outside the therapy time. Please dont try to ask him or give him those when you see him next.
Sensory Therapy:
I know it is new I am saying but I am learning new every day and each one of them say that is the most important for his needs and everyone says they are like foundation. Our body and mind is connected and our five senses play huge role in our mood /temperament and the way we receive and accept our envioronment.Most autism children have auditoy /visual issues.If you have noticed Hari he like to flap his hands,close his ears ,chew things, these are symptoms he could have sensory disorder.Sensory Motor Integration doctor said he is like getting to know how his body react to envioronment and help him.So scheduled his evaluation and it will be done in Jan end.
Decision:
So January end is lot of bomb shells on us. Just kidding. So like a poker player should learn to wait and watch and win when opportunity is right.
With Hari God willing and with love and prayers of you all help him and start his recovery journey in right path.
Mommy's Job:
Searching /Finding therapist who is willing to work couple of hours every day - FOR ABA.
Play role of therapist till then. Everyday between 2-5 I will be in therapy with Hari. So can reach me any other time with any questions/concerns. Taking him to sensory evaluation.
Friends please do drop by to our home any day evening after 6 p.m to play with Hari. Weekends anytime after 1 p.m. We love to have your company around us too.
Hi Anu,
ReplyDeleteGreat job on taking the time to write about Hari in this blog to keep us all updated, that is a big thing so thank you. Yes, we will visit Hari as often as we could.
Good job, Anu, Prashanth & Harshi. Thanks for taking time out to share it with us. These are small but effective steps in the right direction and will gain momentum to reach the goal. Keep doing it and am proud of you folks.
ReplyDeleteAnu... I am so glad that you took a step forward and penned it down for many of others. Kudos to you dear.. Love and stay blessed
ReplyDeleteAnu.. this is Deepthy btw.. Love to Hai
ReplyDeleteThank you for sharing this with us Anu in spite of the full days you have. We will be praying for all of you to get through this successfully and do everything we can to help.
ReplyDelete